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The Latest

The Spring Update from our CEO, Dr. Tanya Stevenson, details MDF’s strategic planning efforts, Annual Conference, and Annual Gala. Learn more about our plans for the year!

MDF is proud to introduce our new Program Director, Mike Knaapen! For the last five years, Mike has directed support, education, and outreach programs for people living with rare disease.

We are proud to announce Kamyra Simone Edokpolor as one of MDF UK’s 2021 Research Fellowship Recipients! Edokpolor's project is titled “MBNL2 Dependent Dysregulation of GABAARs: Implications for CNS Symptoms in Myotonic Dystrophy Type 1”.

If you are living with DM1 or DM2, or are the caregiver of an adult or child with the disease, we invite you to join us for a group conversation to help shape the future of MDF. The conversations will run for 60 - 90 minutes and space is limited. 

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