Advocates from across America took part in our first Advocacy Week at the beginning of May. Led by MDF's National Advocacy Committee, advocates took action each day to urge our Representatives and Senators in Congress to increase federal funding for myotonic dystrophy (DM) research to help us find a cure.
Learn more about the mother daughter duo interviewing the MDF Community. Of her new volunteer role, Sammy says, "We get the pleasure of meeting you, hearing your stories, and offering a platform for you to share your point of view and advice. Living with myotonic dystrophy can be a difficult journey, but we want you to know you're not alone".
Get ready for our first virtual Advocacy Week! Join us for a webinar on Thursday, April 21st from 12-1 PM PDT/3-4 PM EDT to learn how you can become an advocate and educate your Senators and Representatives about DM to successfully build relationships with them and their staff.
Each month this mother daughter duo will interview a friend or family member from the MDF Community. Of her new volunteer role, Barbara says, "We want to hear all about you, your successes and struggles to live your best life, the things you want to share that others don’t understand, your hobbies, and specifically about how you find the roses amongst the thorns".