2021 Virtual MDF Annual Conference

Join us for the 2021 Virtual MDF Annual Conference!

September 10th & 11th, 2021


Click Here to Register!

The Myotonic Dystrophy Foundation (MDF) is pleased to announce the 2021 Virtual MDF Annual Conference is taking place September 10th & 11th!

About the Conference

The MDF Annual Conference unites the entire myotonic dystrophy (DM) community – those living with the disease, their family and friends, industry partners, clinicians and researchers, and everyone else focused on understanding and eliminating the burden associated with myotonic dystrophy.

Building on record success at our first ever virtual Conference in 2020, this year MDF will offer a unique opportunity to learn, connect, support, and empower the DM community. We hope you will join us!


The Conference officially kicks off Friday, September 10th and ends Saturday, September 11th, with the main program running from 9:30 AM - 6:00 PM PDT each day.

For the first time, the Conference will have “soft open” on Thursday, September 9th that may include our First Timers’ Tea to orient and welcome those attending the Conference for the first time, as well as entertainment. By popular demand, more networking, sponsorship, and exhibitor opportunities will be offered on all three days.

Details are subject to change as session topics and speaker availability is confirmed.

Your Conference Experience

A virtual conference is a little different than an in-person conference, as you might expect. MDF will help you understand how to use the web-based platform or application to make the most of your Conference experience. Some features to look forward to include:

  • An ability to schedule one-to-one and group video meetings with other conference attendees.

  • Opportunities to participate in live chats and polls.

  • Ways to interact with our sponsors and exhibitors in their virtual trade show booths and tables for DM related books, podcasts, groups, or websites. Non-profit entities and DM-focused Academic Research Labs may be eligible for a complimentary booth. If you're interested in hosting a booth, mark your interest during registration!

  • And much more!

After you register, you will receive additional guidance and reminders as the Conference gets closer to ensure you have an easy, fun, and educational experience. Don’t forget to check your email Spam and Junk folders for any Conference communications that accidently get filtered away from your inbox!


Session topics were developed based on direct feedback from the DM community through the 2020 conference evaluation surveys, our recent Strategic Planning survey, support group participants, and callers to the MDF Warmline.

This year's virtual conference will have a dedicated Professional Track specifically designed for clinicians, researchers, and industry experts.

The Conference will incorporate many traditional events and activities, including:

  • The First Timers’ Tea, a networking event for those who have not attended a Conference before to orient you to the Conference, MDF, and the DM community. When you indicate this is your first Conference in the registration form, we will know to send you reminders about this special first-timer event and other content to improve your Conference experience.

  • Welcome and State of the Foundation Update to learn about recent successes and future goals of the foundation, plus ways to get involved and help achieve the mission.

  • Exercise Programs, professionally facilitated sessions with modifications for community members of all abilities.

  • “Stump the Expert” sessions with leading DM scientists and clinicians.

  • Meet the Board of Directors! Join a pair of MDF Board members eager to answer your questions and update you on the latest from MDF (sign up during registration). Click here to learn more about MDF's Board Members and their commitment to the organization.

  • Updates from DM Drug Developers.

  • The Closing Dance Party!

Community Panels are back by popular demand! Attend panels for:

  • Individuals with DM1.

  • Individuals with DM2.

  • Caregivers.

These sessions feature panels of individuals with experience, compassion, and knowledge to offer their peers, and hope to provide space for you to share your own stories, tips, and questions.

DM Type Specific Sessions, our program will also include a number of parallel sessions each specifically designed for the DM1 or DM2 community. These specialty tracks are still underdevelopment.

This page will be updated with more information on sessions and speakers as it becomes available.

Registration Types

Ticket Type

Early Bird Rate - through July 31

Regular Rate - starting August 1

Community Member (Invididuals living with DM, their caregivers, family, and friends, etc.)

$25 / Person

$40 / Person

Professional (Health Care Professional, Researcher, Industry Partner, etc.)

$125 / Professional

$160 / Professional

Please note, any Community Members enduring financial hardship are able to register at no cost. Select “Community Member – Free” option during registration. Individuals may also add a donation by selecting “Donate: Conference Challenge” after selecting their registration type.

Attendee Code of Conduct

We look forward to the conference every year and this year is no different. As always, we aim to create a positive atmosphere for all attendees. MDF values the diversity of opinions, experiences and perspectives in our community and we are committed to providing a safe and welcoming environment for all in attendance.

By registering for the 2021 Virtual MDF Annual Conference, you agree to abide by our Code of Conduct. (Click here to download a copy)

Cancellation & Refund Policy

We understand that circumstances and plans may change. MDF is able to offer registration cancellations and refunds made before Friday, September 3, 2021.

Additional Information

If you have registration questions or need assistance with registration, contact the Myotonic Dystrophy Foundation at 415-800-7777 or by email at info@myotonic.org.

Click here to view our Sponsorship opportunities. If you are interested sponsoring the 2021 Virtual MDF Annual Conference, please contact us at development@myotonic.org.

Click Here to Register!

Thank You to Our Conference Sponsors

Platinum Tier

Gold Tier

Bronze Tier


Friday, September 10, 2021 to Saturday, September 11, 2021

© Myotonic Dystrophy Foundation. All rights reserved.