Disease Management

The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

Creating a Medical Team for DM Care

Dr. Jacinda Sampson describes the importance of, and strategies for, creating a medical team for myotonic dystrophy care.

Pain and DM2

A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease.

DM2: Disease Development, Symptoms, & Management

Originally presented on September 10th. 2021 as a part of the DM2 Track at the 2021 Virtual MDF Annual Conference.

Learn about genetic factors causing DM2, the different body systems affected, the most common symptoms, and how best to manage and provide care for the disease from a leading expert. Appropriate for newly diagnosed and those living with DM2 for many years.

Speakers include:

DM1: Disease Development, Symptoms, & Management

Originally presented on September 10th, 2021 as a part of the DM1 Track at the 2021 Vitual MDF Annual Conference.

Learn about genetic factors causing DM1, the different body systems affected, the most common symptoms, and how best to manage and provide care for the disease from a leading expert. Appropriate for newly diagnosed and those living with DM1 for many years.

Presented by Jacinda Sampson, MD, PhD.

Acceptance & Commitment: Strategies for Good Mental Health

Originally presented on September 10th,2021 as a part of the Caregivers & Self-care Track at the 2021 Virtual MDF Annual Conference.

Life with DM can contribute to emotional and mental stressors. This session focuses on strategies and tools for maintaining good mental health, and an explanation of Acceptance and Commitment Therapy (ACT) and how it can be applied by individuals living with DM and their families.

Adaptive Yoga with Basma Gale

Yoga teacher Basma Gale leads a session of breathing, stretching, and movement with adaptive instructions so that anyone may participate. Originally presented on September 10th, 2021 as a Exercise & Movement session during the 2021 Virtual MDF Annual Conference.

Ask-the-Expert: Gastrointestinal Tract (GI) & DM

Do you have questions for DM doctors and therapists? Join Leila Neshatian, MD, MSc of Stanford University for a “Ask-the-Expert” session on the GI tract. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.

Ask-the-Expert: Respiratory Issues & DM

Do you have questions for DM doctors and therapists? Join Valeria Sansone, MD, PhD of the NEuroMuscular Omnicentre (NEMO) for a “Ask-the-Expert” session on myotonic dystrophy and the respiratory system.

Ask-the-Expert: Exercise & Movement

Do you have questions for DM doctors and therapists? Join Tina Duong, PT, PhD of Stanford University and Katy Eichinger, PT, PhD, DPT, NCS of the University of Rochester for a “Ask-the-Expert” session on exercise. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.

© Myotonic Dystrophy Foundation. All rights reserved.